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Ron's Story

Written by his wife, Dianne Newcombe

Lived in Cape Town, South Africa

Ron bravely battled with skin cancer and tragically lost his life in 2010 after a prolonged struggle. His story serves as a poignant reminder of the seriousness of skin cancer, the challenges in medical treatments, and the importance of raising awareness about its prevention. His wife, who deeply wishes to share Ron's story with people around the world, has penned this account. Please scroll down to read about Ron's journey.

"

I met my husband in 1974 and I noticed that he had scars and marks on his face, hands and arms.  He told me they were solar keratosis and he was seeing a skin specialist who was treating the lesions by cutting some out and burning some off with liquid nitrogen.  I was not happy with the rather casual attitude they both had to the issue. That same year he had an ophthalmic surgeon add a tiny quarter moon shape piece of skin under his lower right eyelid.  The cancer had pulled his eyelid down and caused dry eye and other issues. This solved the problem somewhat.

 

I insisted we see another surgeon/dermatologist and ended up seeing a man a few doors down the corridor.   This surgeon took one look and ordered my husband into the clinic the next day.  A particular lesion that had been burnt of numerous times was not going away and this concerned him.  The surgery was long and two days later had to return to the hospital because the lab found his margins were not quite wide enough.  This also involved a large skin flap which took some time to take and heal.

 

The original dermatologist then suggested Ron cover his entire face with Efudix which had the unfortunate result of being too dramatic a treatment.  He was in agony, his face was swollen and he could barely see out of his eyes. I was very angry with the doctor and told him so!

 

Some 7 years had passed by now and we moved from Johannesburg to the Cape into a small country town.  This enabled us to see a new dermatologist in George.  He took the matter of Ron’s skin very seriously.  He treated a few minor things but suggested we visit the cancer unit at Groote Schuur Hospital in Cape Town.  We could, as senior citizens, get this treatment free or at much reduced prices. There was a team of doctors that examined Ron at the hospital and their consensus was to use different creams, oral chemo and small surgeries. 

 

Finally in 2009 his skin had deteriorated dramatically and he had to have major surgery to his left cheek, using skin from his thigh, they also removed the glands on the left side of his neck which resulted in a large dent on the side of his neck.  They removed a portion of his chin and that graft didn’t take.  I went to see him in hospital and the smell was ghastly.  I eventually got the nursing staff organized and the wound was cleaned and dressed.  It was during this phase of treatment that I found out there were basal cell and squamous cell lesions.

 

It was around the end of 2009 that they told me there was nothing further they could do.  He had had all treatments that were available but the cancer was now spreading.  I took Ron to an acupuncturist and for the first time, he was pain-free.  Not cancer free, but not in pain.

 

Our daughter was to be married in 2010 but brought forward her wedding date to 18 December 2009 so her father could attend.  He was heavily medicated for pain but managed to get through the day.  Ron passed on the18 March 2010.  My daughter gave birth to twins on 18 March 2011 so I can’t really be too sad that day as I have lovely granddaughters to have near me.

 

So:  we met in 1974, left Johannesburg in 2000, saw Dr in George and attended Groote Schuur Hospital, had a final diagnosis in 2009, and died three months later.

Ron’s father had the same cancer, and so did his younger brother, both of whom passed before Ron did.  His older sister passed from breast cancer sometime earlier too.

 

I wrote a recipe book with meals/drinks I made for Ron because it became difficult to chew and swallow. I have wanted to share it so that others can benefit.

"

Ron`s skin cancer story
Ron 2008-2009
Skin cancer story

(From left) : Ron, Amelia, Dianne

A picture of the wedding day, December 18, 2009, 3 months before Ron passed away

Adek Story

Submitted by Abdul Rahman

Lived in Kedah, Malaysia

Adek is my cousin sister. Sometime in March 2020 she had a small blister with a white spot on her left eyebrow. When pressed pus mixed with blood oozed out of the blister. It caused a sharp pain once in a while. The lesion did not go away. Two months later, Adek went to consult a doctor at the university hospital.

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On 20 May 2020, Adek underwent an out-patient surgery that lasted about two hours to remove the lump. Histopathology report confirmed it was a squamous cell carcinoma, a type of skin cancer.

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After surgery, the doctor prescribed some medications and suggested that Adek undergo radiotherapy. She refused the treatment but took the herbal medicine.

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Initially after the surgery, Adek’s forehead  started to swell and it took about 10 months before the swelling subsided. The scar started to heal but once in a while she felt itchy. Apart from that her recovery was smooth.

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Madam Wong story

Written by her niece, Wong Linda

Lived in Singapore

In June 2015, my aunt Madam Wong (54 years old) felt a lump in her genital area and went to see a gynecologist. After checks, her doctor recommended that she have surgery to remove the lump as soon as possible. The post-procedure biopsy report of the lump confirmed that she had stage 4 mucosal melanoma ­– a rare and aggressive form of skin cancer.

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Despite the grim prognosis, my aunt was calm and focused on receiving treatment. My aunt is a very positive person by nature. Everyone has to die one day and she knew that it would not help to have negative thoughts and feelings. Also, her have faith in our healthcare system and felt that she had access to the best available treatment.

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In January 2016, a follow-up CT Scan showed that the cancer had spread to her lungs, and she was immediately started on immunotherapy at NCSS.

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Nine months later, another scan revealed that the cancer had spread to her liver and spine. Her  NCSS doctors started her on a more intense treatment regimen and she began to receive double immunotherapy. Over the course of four years, she received 49 immunotherapy injections.

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Thankfully, this more rigorous treatment worked well. She finally completed treatment in April 2019 and is now in complete remission.

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My aunt's treatment journey was full of challenges but she never gave up. She experienced a number of temporary side effects during treatment such as body aches, lethargy, and rashes on her arms and legs. She has also developed a permanent side effect known as vitiligo, where pale white patches develop on the skin due to the lack of melanin. This also turned all her hair white. Madam Wong is also on life-long hormone replacement therapy as her body is no longer able to produce two hormones – cortisol and thyroxine.

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Looking back at her cancer journey, my aunt reflects that her family and loved ones kept her going through difficult and stressful periods. My aunt retired from running a business in 2019, and has been spending her time baking and cooking, watching dramas, reading, and spending quality time with her family.

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By sharing her story, I want to encourage others to go for regular health check-ups, not to be fearful of undergoing tests or scans, and to seek treatment early.

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